Found inside – Page 282We can assess whether the use of a particular coping strategy is associated ... coping . Qualitative Longitudinal Studies Qualitative studies have provided ... After 1 month, my situation got a lot better. Patient and household costs associated with a tuberculosis diagnosis in Lilongwe. The time point for the second interviews ranged from 4 to 12 weeks after the first interview. a service designed to help individuals live as comfortably as possible until they die. 2015;3(4):e217–28. Therefore, although burnout is an important issue in nursing, attending to this dimension of their j …. Such groups may be exposed to greater risk of developing disease, as well as worse treatment outcomes due to poor socioeconomic status, access, knowledge of TB and relevant services, lack of support and stigma [7, 11, 38, 41, 46, 47]. METHODS In this study, we chose a qualitative research method which is suitable for explorative studies.14 Lay rescuer was defined as an individual having provided CPR with no professional obligations in the incident. It was not atypical for a patient from a farming background to report, ‘We get our money selling our pigs and crops, and use our savings to pay for it.’ However, especially for rural subsistence farmers, household savings based on income from selling their crops and piecemeal work, were typically reported to be insufficient to cover a full course of TB treatment, and even less so for MDR-TB. Method Rural residents, farmers and ethnic minorities were the most vulnerable to these barriers, and patients with MDR-TB reported a higher financial burden owing to the centralisation and longer duration of treatment. Munro SA, Lewin SA, Smith HJ, Engel ME, Fretheim A, Volmink J. This was evident in healthcare staffs’ reports and from ethnic minority patients interviewed; among the latter, all came from rural backgrounds and almost all were accompanied by at least one other family member, who would help care and translate for them during medical consultations, and which resulted in increased costs related to transport, accommodation and food. It doesn’t have to be anything special…, P3: …it can just be sitting in the gazebo in the garden reading and just not having a day with any pain in my arm. Using a qualitative study design, we conducted five focus group discussions and 47 in-depth interviews with purposively sampled TB and MDR-TB patients and healthcare providers in Mandarin, between August 2014 and May 2015. 2008;7(1):17. For most people, the notion of staying in bed or sitting down reading for prolonged periods during a ‘working day’ was not only unwelcome but unfamiliar as time to ‘indulge’ had previously only been available once work tasks were completed. Our findings indicate that these coping measures were frequently inadequate from the perspective of both patients and providers [30]. Receiving a prognosis which changed an individual’s or a dyad’s perspective on both present and future time acted as a strong catalyst in shaping their day to day behaviours. However this was tempered with an understanding that the onus could often be on the patient or their carer to extract information from professionals rather than it being provided automatically: And you have to ask them the right questions to get the answers out of them, whereas they should give you all of the answers straightaway. Why and when do they perceive these coping strategies as effective? Women (44%) and men participated in almost equal numbers (see Table 2); an intentional effect of the purposive sample, which sought to provide a gender-balance to participants’ accounts. Our study indicates that financial constraints were identified as the most pervasive barrier to care amongst patients and health care professionals. The protocol for the study has been published[34]. Yes Coping strategies. The second time we borrowed 5000 Yuan (785 USD). Interviews were conducted by DR (an experienced qualitative researcher with particular expertise in gerontological research) and listened to/read by CW (an experienced qualitative research with particular expertise in palliative care research). So I bought saline and bags by myself, and used the drug given by the doctor. A clear message from this study is that whilst supportive relationships with, and trust in, healthcare professionals is important, participants wanted a different, peer delivered, style of intervention to promote effective coping strategies. This exploration of different aspects of the data from the qualitative serial interviews enabled identification of common factors within interview narratives and highlighted differences between patients, between carers, within dyads and over time. The ability to cope with living with advanced cancer as a patient or family carer fluctuates, with individuals combining perceptions of illness, responses to life events and inherent psychological traits to identify, develop and use effective coping strategies: …I don’t do low. Participants also acknowledged that they enjoyed activities which enabled them to ‘switch off’ from considerations of their diagnosis and prognosis, often through participation in everyday activities which others thought they should be protected from: But he thinks it’s terrible because [son’s partner] comes with [disabled grandson], and she’s here a lot, and he thinks it’s wearing me down. Both patients and carers spoke of ‘treats’ but not always in the same way which was indicative of the relationship within the dyad. Whilst such research is important in identifying the importance of coping, and its interrelationship as a concept with aspects of wellbeing, it does not provide a rich understanding of the reasons, processes or types of strategies that people use to deal with advanced cancer[31]. We have had to borrow money from relatives. This article is a qualitative study exploring coping strategies of energy-poor households in urban settings in four European countries with different levels of energy … This is a relatively high sample size for qualitative research, but as these were people with advanced cancer we anticipated a high attrition rate due to illness or death over the course of the study. Patient Adherence to Tuberculosis Treatment: A Systematic Review of Qualitative Research. Springer Nature. […] So when my sisters complain about it, I respond, “I will just wait till my daughter is married. RESEARCH METHODS As Yin (2016) stated “research designs are logical blueprints” (p. 83). Krishnan L, Akande T, Shankar AV, McIntire KN, Gounder CR, Gupta A, Yang W-T. Gender-Related Barriers and Delays in Accessing Tuberculosis Diagnostic and Treatment Services: A Systematic Review of Qualitative Studies. 2005;16(2):189–204. Found inside – Page 38In a study by Deans and colleagues (2010), which employed a qualitative research ... more coping strategies than those recognized and reported by parents. PLoS One. This qualitative study was part of a larger mixed methods evaluation study conducted in eight counties of Kenya from 2016 to 2019. If you have any urgent queries, please visit the help pages to contact our customer service team. To better understand their strategies for dealing with the traumatic event, we used a quantitative-qualitative method. Trans R Soc Trop Med Hyg. So we have to rely on government policy to help these people. I thought, you’ve got just include, one hopeful. For more information about PLOS Subject Areas, click 4 0 obj
A second key difference between TB/MDR-TB treatment for rural patients, is that the former is decentralised to the county and village level, while the latter at the time of the study was centralised to Kunming (see Fig. Trop Med Int Health. The results of this study are important as they demonstrate that people with advanced cancer do cope well, but that such coping strategies are unlikely to be promoted or discussed during their interactions with health care professionals. There does not appear to be a linear development of the ability to cope, nor necessarily long term maintenance of coping at a particular level. Strategies include being realistic, indulgence, support, and learning from others, which enabled participants to regain a sense of wellbeing after emotional challenge. As well as discussing the rationale for their prioritisation of the importance of different coping strategies, focus group participants also discussed how they would like to learn about developing such strategies. Effect of a comprehensive programme to provide universal access to care for sputum-smear-positive multidrug-resistant tuberculosis in China: a before-and-after study. The multidisciplinary team comprises seven females and one male: The study was led by Dr CW (PhD), Reader in Palliative Care, University of Lancaster and an experienced palliative care practitioner. Privacy published qualitative studies, and only a few quantitative studies have investigated aid worker coping strategies. Prices reported by patients for the insurance scheme ranged between 80 and 200 Yuan (12–31 USD) per year. Each interview transcript was created as a case node and multiple matrices produced to cross-reference individual, paired or multiple case nodes against selected codes within each matrix. For others, there was little history of similarly stressful, uncertain or difficult situations and knowledge was then gained from either current personal experience, health professionals or health literature provided through the clinic or other sources such as the internet. Journal of Ethnographic & Qualitative Research, v5 n1 p12-30 2010 This study examines coping behaviors and felt experiences of homeless adults in Michigan's Upper Peninsula. Positive coping strategies may be positively associated with healthy functioning in the face of the encountered stress, and maladaptive coping strategies may be negatively associated with healthy functioning in the face of the encountered stress. The Effect of New Cooperative Medical Scheme on Health Outcomes and Alleviating Catastrophic Health Expenditure in China: A Systematic Review. Health professionals are well placed to identify people with advanced cancer and carers who might benefit from access to such information about effective coping strategies. We therefore planned to over-sample at time point one to enable an adequate sample size at time point two. Data Availability: The written consent given by participants at the time of data collection did not give permission for data sharing through public repositories. P3: But a good day can be anything. RESEARCH ARTICLE Open Access Biopsychosocial experiences and coping strategies of elderly ESRD patients: a qualitative study to inform the development of more holistic and person-centred health services in Singapore Emeline Han1†, Farah Shiraz1*†, Victoria Haldane1, Joel Jun Kai Koh1, Rina Yu Chin Quek1, Semra Ozdemir2, The most commonly cited barrier to the successful treatment of both tuberculosis and multidrug-resistant tuberculosis (TB/MDR-TB) is financial [5–11]. Now we have to go back to sell the buffalos for about 4000–5000 Yuan each. In ‘being realistic’ participants often remained reluctant to make immediate plans for future events and demonstrated the desire and ability to compartmentalise, especially in coping with fears for the future. Found inside – Page 899... each map was decided for each match) and some of the competitive strategies used. ... qualitative research that has explored stressors and coping (e.g., ... This is particularly visible in the ‘treats’ which emerged as such an important element of the narratives but where greater social capital and material resources (including accessible transport and higher disposable income) increased the range and ease of access to options. 2013;17(12):1575–80. User representative, Liverpool, United Kingdom, Affiliation The reasons given for differentiating in this way were that on the ‘wasted’ days the ‘ineffective’ use of time produced feelings of regret as ‘time’ in the sense of life expectancy was limited. Audio files, transcriptions and NVivo files are stored on the secure server for 10 years. An informal carer for a patient recruited to the study and identified by the patient as the person they get most support from, not necessarily a family member. The successful selection and implementation of such policies and interventions could benefit from supplementary quantitative research, which documents the magnitude and central determinants of patient costs, including, demographically disaggregated data on indirect costs, economic contributions of patient coping strategies and costs of care relative to household incomes [21, 27, 33]. I feel so sad. 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